On Wednesday, Feb. 11th, 2009, there will be a big thing happening in the lives of us who have had kids born with Congenital Diaphragmatic Hernias. There is a group called "Breath of Hope" that is trying to trademark the phrase "Congenital Diaphragmatic Hernia Awareness" making it impossible for any other group to have that phrase in their description. It feels a little like they are taking away my right to belong to whatever group I want to. We belong to Cherubs and we love that group very much. If Breath of Hope wins in court tomorrow, Cherubs and every other CDH awareness group will have to stop using that phrase or they will suffer negative consequences. I know it probably doesn't mean much to most of you. But if you will just keep those law makers in your hearts and prayers tomorrow, we would appreciate it. If this passes, it will just make it harder for us to raise awareness about CDH and thus slowing down the great progress the professionals are making. Here is the link to sign the petition, if you wish to sign ithttp://www.ipetitions.com/petition/cdhawareness/index.html
Thanks for letting me rant... by the way, do you like the ribbon that one of the CDH moms in Mexico made for me? Pretty cool, huh?
4 comments:
Thanks for the info. I've never even heard of that. Your little guy is so cute (loved the picture from the previous post!)
Did you want to breath stinky breath on "Breath of Hope"? Sorry. Had to. I did sign the petition, so you can forgive me.
Count me in-I signed too!! Love you guys!!!
What happened with this? I'm a little behind. :)
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